Since then, my leg muscles have gotten weaker and weaker, now to the point that any transfers are impossible. As a result, all my time is spent bedridden. The home health agency has completely dropped the ball providing me with NO physical and occupational therapy during the past two weeks. Nurses have come out every other day to change my left leg cellulitis bandages. The home health agency has decided to "drop" me because they feel that I am "unsafe" in my own home. I am appealing that decision.
In the meantime, I am asking my primary care physician about sending me to Duke or Chapel Hill for intensive muscular dystrophy clinic intervention.
Each morning from 10 to 12 am, I have CNAs come to my house at my expense, to help with toiletry, bathing and dressing, as well as minor chores such as doing laundry.
I am stuck between the proverbial "rock and a hard place." Suggestions, anyone???